Brave brain tumour tot Jesse Langford-Daley from Carbrooke is page boy at parents’ wedding

PUBLISHED: 11:57 30 April 2017 | UPDATED: 17:06 30 April 2017

Jesse Langford-Daley with his parents Anneka Daley and Michelle Langford.
Photo: supplied by Anneka Daley.

Jesse Langford-Daley with his parents Anneka Daley and Michelle Langford. Photo: supplied by Anneka Daley.

supplied by Anneka Daley

A couple whose lives were turned upside down when their little boy was diagnosed with a brain tumour have spoken of his bravery and their delight that their “little soldier” is well enough to be a page boy on their wedding today.

Little Jesse Langford-Daley, who turned one on April 22, has been battling a rare atypical teratoid rhabdoid tumour followed by other complications which led to him having an emergency four-and-a-half hour operation last Wednesday.

But thankfully the youngster is recovering well from his latest surgery, and with the help of staff from the Norfolk and Norwich University Hospital, he will be able to attend the wedding of his parents, Anneka Daley and Michelle Langford, at Tuddenham Mill, near Newmarket, today.

“We would not want to go ahead if Jesse wasn’t there - he is our world. We are desperate to share his last name - because he is already a Langford-Daley. It is really special for us to complete the jigsaw of our family,” said Miss Daley, from Carbrooke, near Watton.

“The hospital has been amazing with the arrangements for our wedding and two nurses are coming to look after him. We feel very grateful for him to be there. The hospital really understands how important it is.”

It was in February this year that Jesse was diagnosed with the tumour, and he was sent straight to Addenbrooke’s Hospital in Cambridge where he underwent a seven-and-a-half-hour operation.

Surgeons were able to remove 95pc of the tumour, but it had already affected some of the nerves in his brain and has left Jesse unable to swallow and digest food himself.

Jesse is now fed via a central line, and complications with this last week led to him twice suffering a respiratory arrest and the need for the operation on Wednesday.

But despite all of this the inspiring youngster was yesterday smiling and well enough to play, and today he will be the most important guest at his parents’ wedding day.

Miss Daley said: “He is absolutely amazing, he is incredible. I think most of us adults would still be lying flat on our backs after the first operation, let along everything else he has been through. He has got a long way to go but he is an absolute trooper. Proud doesn’t really do justice to how we feel, but we are the proudest parents.”

Other news

Yesterday, 21:26

Born in 1868 Prince Frederick Duleep Singh was the son of Maharajah Dueelp Singh, the last king of the Punjab, and grew up on the Elveden Estate.

Yesterday, 16:17

Snow could be on its way to Norfolk on Sunday as the temperatures plummet to below freezing overnight.

Yesterday, 11:21

A damning dossier compiled by a senior whistleblower from the region’s ambulance trust has claimed at least 40 patients died or were harmed due to delays over Christmas and New Year - including one person who froze to death.

Yesterday, 11:05

A consumer group has said two Norfolk postcodes are among the worst in the country for cash machine provision.

Most Read

Yesterday, 08:55

A man has been arrested after driving a stolen tractor through a town centre.

Read more
Saturday, March 11, 2017

A company was today fined £50,000 after a man suffocated while working in a grain silo on his father’s farm.

Read more
Norwich Crown Court
Monday, January 25, 2016

It is a shocking murder mystery which has kept a community wondering for more than 40 years.

Read more

An attempt to revive a Breckland heritage site has failed after dwindling visitor numbers forced the owners to close the attraction.

Read more

Local Weather



max temp: 3°C

min temp: 3°C

Digital Edition

Read the Watton and Swaffham Times e-edition today

Show Job Lists

Newsletter Sign Up

Sign up to receive our regular email newsletter